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© British Association of Social Workers
Ethnicity and Caring for a Disabled Child: The Case of Children with Sickle Cell or Thalassaemia
Unit Head at the Ethnicity and Social Policy Research Unit, University of Bradford
Senior Research Fellow at the Ethnicity and Social Policy Research Unit, University of Bradford
Correspondence to Waqar Ahmad or Karl Atkin, Ethnicity and Social Policy Research Unit, University of Bradford, Bradford, BD7 1DP, UK
Summary
Services for haemoglobinopathies have been a major site of struggles for the black communities, yet the social research literature on haemoglobinopathies remains patchy and fragmented. We provide an overview of the literature on sickle cell disorders and thalassaemia major in the broader context of debates on childhood disability and chronic illness, and on ethnicity, racism and health care.
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K. Atkin, W. Ahmad, and E. Anionwu Service support to families caring for a child with a sickle cell disorder or thalassaemia: the experience of health professionals, service managers and health commissioners Health (London) , July 1, 1998; 2(3): 305 - 327. [Abstract] [PDF] |
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